In Memoriam of Lynn Grefe

Lynn Grefe, long-time president and CEO of NEDA and a noted political and social activist, passed away April 28 at her home in Edgewater, NJ – surrounded by family and friends –  following a valiant, year-long battle with cancer.  She was 65. 

Lynn has helmed New York City-based NEDA for more than a decade, bringing her expertise, drive and dedication to the cause in 2003. In that role, she expanded the organization dramatically, establishing it as the leading U.S. non-profit supporting individuals and families affected by eating disorders. She was passionate about providing hope to the 30 million Americans who will struggle with these illnesses at some point in their lives and worked to ensure that they, as well as their families and loved ones, had a voice. During her tenure, Lynn launched or grew numerous innovative and ground-breaking programs, including the non-profit’s annual National Eating Disorders Awareness Week campaign; NEDA’s Helpline, which provides information and referrals to those in need; its Navigators peer support program; the Loss Support Network; a national conference bringing together families, individuals and professionals; and an interactive youth website, She created NEDA’s walk program, which grew to 65 events across the country with more than 15,000 participants annually. Her contributions also include legislative victories in eating disorders education, awareness and treatment access; as well as successful public media advocacy campaigns, sponsorships and alliances.  - 

Read more about Lynn here.

Lisa LeeNEDA, lynn grefe